Q: Dear Doctors,
I have posted a writeup of this patient’s history below my signature because it is complicated, but I feel necessary, for you to understand why I’m having difficulties.
Treatments I have tried include progesterone 100mg SR, a detox regime that includes Burbur Detox, a colon cleanse and liver flush, Amantilla, essential fatty acids, dessicated adrenal, DHEA, Interstitial Cystitis Formula, and Sleep Link.
Does anyone have further suggestions to help this nice lady?
In peace, love and joy,
Leigh Erin Connealy, MD
Patient is a 46 year old Caucasian female. Patient presents with Interstitial Cystitis (IC) confirmed by cystoscopy and biopsy in 1992 with onset of symptoms occurring in 1979. Cystoscopy revealed severe form of disease with Hunners ulcers and scar tissue present. Patient reports a myriad of autoimmune symptoms including fibromyalgia, chemical sensitivity and intermittent environmental allergies. Pain level is reported most days at 6 to 9 with extreme sleep disruption and frequency especially nocturia. Generalized muscle aches and pain radiating down legs. Low grade fevers are daily occurrence.
Current course of treatment is Elmiron 100mg TID, Pyridium PRN (daily),Oxycontin 20mg TID to QID, Chinese Herbal Formula designed for immune support and IC. Patient is receiving acupuncture treatments weekly, is in pain management and is about to have trial implantation of an ANS unit.
In 1979 prior to bladder symptoms patient was hospitalized with severe weeping rash on entire body but extremities were first to present and suffered secondary infection. It was thought that it was possible result of chemical exposure to PCBs, polychlorinated biphenyl. Approximately 200 people were treated for similar symptoms with varying degrees of severity all having been in the same area where high concentrations of PCBs were discovered. Onset of IC symptoms occurred within 3 months. UTI was treated with Bactrim and symptoms never dissipated even after clear cultures. Urologists continued to prescribe multiple courses of antibiotics over approximately 9 months even though cultures showed clear after initial course. Multiple urologists and Gps were consulted over next several years with no diagnosis until 1992. The same year, 1992, patient diagnosed with Epstein Barr Virus. Serology work was performed when autoimmune symptoms became acute. Fevers of 103, swollen lymphs and light sensitivity. Patient has sought numerous alternative modalities including herbalists, acupuncture, many types of bodywork and energy work, magnet therapy, visualization, meditation, etc. Patient has been in psychotherapy as well to deal with chronic pain issues. After diagnosis urologist tried bladder instillations with Heparin and instillations with RIMSO. Several pharmaceutical approaches were tried prior seeking pain management. Antidepressants, Elavil, Neurontin and more recently Lyrica. Patient reports more interference with functionality than pain relief.
Currently patient is seeking help with coping with severity and pervasiveness of symptoms. She recognizes that in addition to pathology presented there is iatrogenic considerations from long term opiate use. Patient is still motivated and open minded regarding course of treatment.
Center for New Medicine, Inc.
http://www.centerfornewmedicine.com 6 Hughes, Suite 100
Irvine, CA 92618
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