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Q: I received the inquiry below. any input would be appreciated!
Linda Huxtable, ND
Medicine People

Hi Linda,

Thank-you so much for advising Carol to advise me about my daughter. Meg has baffled the Drs for 8 years. they finally came to the diagnosis of Eosinophilic granuloma with two jaw lesions, T4 and right rib and a spot in her lung. All healed but the jaw which still flares and gives her terrible pain. They call this Chronic multifocal osteomyelitis garre. She has had two bone biopsies which have been inconclusive for bacteria and Langerhans Cells so she never had chemo. We are about to have another MRI of her jaw to determine any new lesions.
When meg was 7 yos old, her left shoulder started drooping and she had pain there. We saw an ortho for almost a year who keep Xraying her shoulder and calling it a strain. He also R/O juvenile arthritis. her sed rate has always been 21, slightly elevated. After increasing pain, she developed pain in her rib area and her face. She ended up in the hospital and with a simple CXR they found a FX T4 and a rib lesion. She had a bone scan which showed a jaw lesion. The next step was a biopsy. They biopsied her spine lesion and it was benign and inconclusive for Langerhans Cell Histiocytosis.
Over the course of the next few years we saw an ortho Dr, Dr McMahon, an awesome Pediatric Hemotologist Oncologist, an Infectious Disease Dr. They checked for everything including Cat Scratch fever. her vertebrae grew back, her rib lesion went away which really made it look like eosinophilic granuloma. She started having chest pain and they found a spot in her lung. It resolved before they could biopsy it. She later developed a second mandible lesion. They biopsied this by removing her wisdom teeth. They checked for bacteria and EG and sent a second sample to USC for a second opinion. Still nothing conclusive- thus the DX Chronic multifocal osteomyelitis- an aseptic type. They think Meg is the first child they have seen with two extremely rare diseases. She has been on antiinflammatories for years and still has periodically jaw inflammation and pain. She is scheduled for another MRI next Friday.
It was interesting you mentioned vaccines. Yes, she has had them all except the HPV. This all started after her second Varicella injection. She for years would get a canker sore prior to a flare up. they cultured , did blood work with no results.
She is now 15. She was born three weeks early and had jaundice but is otherwise healthy. Mom has MS and had 3 miscarriages prior to Meg, It was found I had a lupus type antigen that made me miscarry.
Hope that helps. I wondered what ACS 200 is? I will call to order the MMS and dental pack and probiotics. I’m praying this is the right decision. We tried alternative before with terrible results. I’m trusting none of this will hurt her further. I’m concerned about her stomach as she has been on anti-inflammatories for so long.
Thanks Again for all your help,
kathy walker

A1: I would check for all the herpes (1,2,6) and Epstein Barr virus and HIV in the blood. I would bet she has one at least. David Steenblock, DO http://www.stemcell.md

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A2: I suggest Meditation on 4 arm and 1000 arm Chenrezig as well as "sending and taking". What are the results of allergy and food allergy testing? Perhaps try eating for her blood type diet--goes beyond allergy into lignan compatability. Also a purge stool paracite lab test. If it is not allergies perhaps it may be paracytes. What meds was the mom on during PG? That may have affected development. Nettle Leaf, Cats Claw and Devil's Claw herbs come to mind perhaps with Symphytum and Equisitum for support. IV C might help if there is a subacute infection going on in the tissues? Systemiclly active plant digestive enzymes also come to mind, perhaps nattokinase to dissolve fibrin buildup from inflammation rxn.. How much Vit D is daily dose? Try 50k Vit D. Fish and Flax oils may be needed.

Why is this lady complaining about Alt Meds as the MD didn't help either.

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A3: Dr Gordon, this screams of Lyme, co-infections and mycoplasmas....mom had MS and 3 miscarriages...The patient probably got all the toxins from her mothers body, which is common with Lyme disease....Did mother have mercury in her teeth?? There is no doubt that the mother's body was full of unwanted pathogens and toxins....bottom-line this SCREAMS of Lyme disease and all co-infections.....she was most likely born with Lyme and we in the Lyme community see this as one of the worst Lyme to get control of....I am not a doctor so obviously I can't post my opinion, but this girl is in trouble and it will only get worse...typical of allopathic docs to run hundreds of test only to find them negative....Also, how many vaccines did she get???????? It is a must that she start a life-long detox program. Reducing the pathogens/toxins is a must. She MUST give up, GLUTEN, SUGAR, CAFFEINE, SODA's, FAST FOODS AND MOST IMPORTANTLY NO GMO FOODS, while eating as much organic foods as she can.....this is just the beginning of the changes she will have to make if she wants to get control of this serious infection. It only gets more deadly if they ignore this....I work with thousands of Lyme patient's and this young lady is in trouble.....Should they ever decide if she has a Lyme diagnosis, I would be happy to put her in touch, online, of other teens who are also suffering....The leader of one group is not 18, but she lost her ability to walk and was in a fetal position....Once she found the road to recovery, she began reaching out to help other teens, giving them hope.....

********Sorry had to vent.....but this is a very sick girl and will only get worse...my heart aches daily as I watch fellow Lymies die and IDSA, plus more doctors ignore it....criminal in my humble opinion!!

Regards,
not allowed href="mailto:LymeAngl@aol.com">LymeAngl@aol.com
Lyme Advocate, Activist and Lyme survivor

PS...mark your calendars for June 25-28, 2009 for a cutting edge Lyme Conference, In Phoenix, Arizona........Announcement will be made here on FACT with a lists of speakers. You won't want to miss this conference...

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& http://bit.ly/xfOQJc
recommend books http://bit.ly/x4AptG
Live Blood http://bit.ly/9zFIG3 http://www.dreddyclinic.com/products/ghchealth.php
http://www.facebook.com/groups/livebloodcourse/

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